abdominal pain gluten
Do I have celiac disease?
I have had the blood work and the endoscopy and they were both negative for Celiac. Half of my family has this disease. I have a lot of upper abdominal pain, nausea, vomiting, diarrhea. I went on the gluten free diet for a while and I felt better. My doc said that I have Irritable Bowel Syndrome. I talked to my cousin who is an RN and she said they all say that if they dont know exactly what is wrong with you and when I brought up the Celiac thing to my GI doc again he said I def dont have it and that pain is not associated with Celiac. I know it is because My Aunt and my Uncle had a lot of pain as well as my cousin. What do I do??
Question to you: Did u start the Gluten Free diet prior to testing? If u did, then u messed up the test (inadvertently.)
There are many reasons to fail a test even if u do have Celiac:
Many Celiacs do not carry the IGG and IGA antibodies tested in the blood work.
Lab or doctor error.
The GI who read the endoscopy is not familiar with Celiac and did not read the test right.
Or u did not consume enough gluten.
I would suggest that u get genetically tested since so many family members have it. If u have the genes then it is VERY safe to say u may not have af ull blown case yet but its coming, so going GF will be your destiny. Also, u do not need to be eating GF for the genetic testing. Its about 200-300 bucks I think but its done at home, no worries with insurance.Try the lab enterolab. I hear they are ok.
I would suggest also seeing another GI. Go to www.csaceliacs.org. Click “Local Support.” Look up your area and contact that support leader. They should be able to tell you a good GI doc in your area who knows Celiac, and u can get with them about going to meetings and getting support.
if the GF diet helped and u have a family history of Celiac, its HIGHLY likely u do have it. U may have been tested too early, the damage to the villa may not have been bad enough yet.
Best ofl uck and feel free to email me for more help.
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